This is the Fibro Page
from
She Who Watches and Waits

On this page - and other pages I've linked to this one - you will find a number of resources and much information on Fibromyalgia, MCS, CFIDS and a number of other disorders. The information here has been taken from various sources on the internet, and where possible, I've noted the original source. If you are the source of information on this and other pages, but I have not given you credit, please forgive me. Sometimes the brain fog that results from the fibro makes it difficult to do things exactly the way they should be done.

This is a list of some information documents available from the Fibrom-l listserver. You may obtain any of these by sending an email

To: LISTSERV@MITVMA.MIT.EDU
Message: GET FILENAME FIBROM-L
(example: GET FM-PAIN HANDOUT FIBROM-L)

File Name

Description

FIBROM-L WELCOMELetter to new subscribers
FM-PAIN HANDOUTDr. Devin Starlanyl
ALLERGY INFOFor your allergist, ENT, Dentist, OG/GYN by Dr. Starlanyl
PT INFOFor your Physical Therapist, Surgeon, Urologist, and Consultation by Dr. Starlanyl
5HTP INFO5-HTP/TRYPTOPHAN Info by Miryam Williamson
PAIN PROGRAMCedar/Sinai Pain Program
FIBROM-L PT-FAQPatient Info by Dr. David Nye
FIBROM-L MD-FAQPhysician Info by Dr. David Nye
FREE MEDSInformation on obtaining free medications
LOWE INFONotes regarding Dr. Lowe's treatment of FMS

Finding Physicians

So many of you want to find physicians in your area. You can request that from this network, as well as support groups in or around your area. Support groups are good in that you can meet others from your area, and ask them who they see so you can begin your search for a physician. The address is:

FIBROMYALGIA NETWORK
P.O. BOX 31750
TUCSON, AZ 85851-1750
# 1-520-290-550

Call 1-800-853-2929 (Fibromyalgia Network - located in Arizona) for medical providers and/or support groups nearest you. They will ask for your zip code and then provide you with a list of those closest to you.

Research and Treatment Centers

Federal government sponsors 14 research and treatment centers nationwide for research on and treatment of multipurpose arthritis and musculoskeletal disease. The centers should contain FM units. (If they don't, they should - our tax dollars at work.) I don't know how good the centers are or how extensive the types of treatment are. They are something we should be familiar with - I believe that a Federal facility can't turn anyone away. Those who do not have a center anywhere near might want to discuss the matter with their Congress critters.

South/Southeast:
William J. Koopman, M.D., director
Department of Medicine
University of Alabama at Birmingham
UAB Station, THT 429A
Birmingham, Al 35294
(205) 934-5306
(has FM treatment)
John B. Winfield, M.D., dir.
Department of Medicine
Division of Rheumatology
University of North Carolina at Chapel Hill
932 FLOB, UNC-CH, School of Medicine
Chapel Hill, North Carolina 27514
(919) 966-4191

Northeast:
Charles L. Christian, M.D., dir.
Cornell University Medical College
The Hospital for Special Surgery
Research Building, Room 605
535 East 70th Street
New York, N.Y. 10021
(212) 606-1189
Robert F. Meenan, M.D., dir.
Department of Medicine
Boston University School of Medicine
71 East Concord Street, K5
Boston, Massachusetts 02118
(617) 638-4310
Matthew H. Liang, M.D., dir.
Department of Rheumatology
Brigham and Women's Hospital
75 Francis Street
Boston, Massachusetts 02115
(617) 732-5356
Naomi F. Rothfield, M.D., dir.
Department of Medicine
University of Connecticut School of Medicine
263 Farmington Avenue
Farmington, Connecticut 06030-1310
(203) 679-3605

Mid North:
Roland W. Moskowitz, M.D., dir.
Division of Rheumatology
Case Western Reserve University
2074 Abington Road
Cleveland, Ohio 44106
(216) 844-3168
Richard M. Pope M.D., dir.
Department of Medicine
Northwestern University Medical School
303 East Chicago Avenue, Ward 3-315
Chicago, Illinois 60611
(313) 503-8197
Kenneth D. Brandt M. D., dir.
Department of Medicine
Indiana University School of Medicine
541 Clinical Drive, Room 492
Indianapolis, Indiana 46202-5103
(317) 274-4225
David A. Fox
Department of Internal Mdedicine
University of Michigan Medical Center
Taubman Health Care Center, Room 3918
Ann Arbor, Michigan 48109-0358
(313) 936-5566

West Coast:
Halsted R. Holman, M.D., dir.
Department of Medicine
Stanford University
100 Welch Road, Suite 203
Palo Alto, California 94304
(415) 723-5906
Bevra H. Hahn, M.D., dir.
Department of Medicine
Division of Rheumatology
University of of California School Of Medicine
10833 LeConte Avenue, 47-139 CHS
Los Angeles, California 90024-1736
(213) 825-7991
William E. Seaman, M.D., dir.
Department of Medicine
University of California, San Francisco
P. O. Box 0868
San Francisco, California 94143-0868
(415) 750-2104
Dennis A. Carson, M. D., dir
University of California, San Diego
Department of Medicine, 0945
La Jolla, California 92093
(619) 558-1291

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